Resources

Here are a few of our favorite resources for parents/caregivers of children with complex medical needs (listed alphabetically):

Featured Resource:

Neotech Homehealth

Neotech Homehealth

Founded in 1986 by a physician and two biomedical engineers, Neotech has proven to be a leader in the development of innovative neonatal, pediatric and respiratory products that have helped patients world wide. Neotech’s specialty is in creating skin friendly products that are ideal for neonates. Neotech goes above and beyond to support the families needing/using their products. They have an amazing Home Health program that works hard to make sure that families continue to receive the products they need after they leave the hospital.

2Dance2Dream

2danceLegacy of Hope Austin lauched as a non-profit organization in Austin, TX in August of 2010. From that point on the director, Julie Lyles Carr, began pushing to start several programs under one firm goal–to provide fun, celebratory, free services to families of children with special needs. This was the catalyst for starting 2night2dream (date night/respite care), 2learn2dream (tutoring), and 2dance2dream (dance classes and performances).


Complex Child

480257_10150614094858231_2059363672_nComplex Child is a monthly online magazine written by parents of children with special healthcare needs and disabilities. It is intended to provide medical information, along with personal experiences, in simple language that other parents can understand.

 


CPATH Texas

1897793_638924606180037_536810562_nCPATH provides resources, support, and financial assistance to families and individuals living with cerebral palsy, while building community awareness and acceptance for all.

 

 


Feeding Tube Awareness

544589_684802068208806_1680078898_nThe Feeding Tube Awareness Facebook page is the largest online support group for pediatric tube feeding in the world with 40,000 “fans” and counting. Volunteer staff members dedicate countless hours each week to answering every question asked on the Facebook page, constantly striving to improve the quality and quantity of information provided on the website, and building relationships with providers of services that are vital to those with feeding tubes. All of this is done while balancing careers, families, educational pursuits, and caring for their own medically complex children.


Hand to Hold

29984_119641054741154_2398206_nHand to Hold provides ongoing support, education and navigation resources to parents and serves to fill the service gap that currently exists for families who have had a child in the NICU or who experienced a loss. By providing a holistic approach to preemie care in partnership with leaders in the field of prematurity and child health and development, Hand to Hold has the power to improve the lives of parents of preemies, babies born with special health care needs and those that experience a loss due to these challenges. Services provided directly to parents are done free of charge.


Hope’s Seed

13151760_1584783405168113_8605823937465621372_nEnriching the lives of Texas’ children who are medically fragile and terminally ill.