Casey was born in 2006. If she had been born even a year or two sooner, chances are she would not have survived her birth. If it had been 3-5 years sooner, chances are I would not have survived either. Medicine is constantly advancing. This has put us in an interesting position. We often refer …
Angel Dinner and Tree – 2015
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2015 Special Needs Holiday Party Wrapup
On Saturday, December 12th, we co-hosted our 4th Special Needs Holiday Party. We co-hosted with CPATH Texas for the second time and with the Palliative Care Team of Dell Children’s Medical Center. This was our first year hosting the event at Dell Children’s Medical Center. We took last year off, and came back bigger and …
Nursing – Getting Started (Part 1)
I remember it like it was yesterday. I had all of the traffic lights on the back roads timed perfectly. I knew exactly how long I had at each red light to jump over the console, suction Casey, and get back behind the wheel before it turned green. I knew all the places I could …
Holiday Party – 2015
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Decorating the Tree
It was a beautiful day today! We really could not have picked a better day to decorate the angel ornament tree. We had some great helpers volunteer their afternoons to help us get everything done. The area around the hospital is called Mueller. Mueller graciously allowed us to decorate a tree in the park directly …
8 Gifting Tips for Complex Kids
Buying gifts for kids with complex needs can be tricky. Hopefully these tips can help you find the perfect gift for the special little ones in your life. An easy go-to gift that people love to get are Gift Baskets for Women. They are cute, soft and cuddly and you can pick one up just …
Angel Ornament Party
Last night was the second Angel Ornament Celebration. We had a great turn out. The palliative care team hosted the event up at the hospital, sMiles for Sammy brought dinner and we brought all the craft supplies to make the special ornaments. I love to hear all of the families share their memories and wonderful …
Why Special Needs Parents Say Bah Humbug
We are all very aware that being a parent to ANY child is stressful. There is the financial concerns, constant worrying about their health and safety. Concerns that your making the right choices. Making choices for ourselves if one thing; making choices for a family is really heavy. Many of us know of some of …
To the Newly Diagnosed Family
I am often asked, “If there is one thing you could tell others in the beginning of this journey, what would it would be?” Depending on my day, this answer varies. There are few things I would like to share with that mom or dad whose child was just diagnosed (with anything really- it doesn’t …