When people refer to very medically-involved individuals there are 2 terms that seem to be used often- Medically Complex and Medically Fragile. Neither is really offensive, and there is no right or wrong term. Recently as I was explaining some of the vision behind Casey’s Circle and used the term Medically Complex frequently when referring …
What is a Circle?
Many people have heard the terms ‘circle of care’, ‘circle of trust’ or ‘circle of friends’. We purposely did not include an ‘of…’ in Casey’s Circle. When you have a medically complex child, you quickly start to build your circle. It is an all encompassing circle. You may start by adding care team members (doctors, …
Nursing – Finding the RIGHT Nurse (Part 5)
When we first started with nursing I was very unsure of how things work. I would tell the agency we used the hours I wanted filled (within the amount of hours approved by our insurance) and they skills that we needed a nurse to have, but I didn’t feel like I could say much more …
Birthday in Heaven
Birthdays have always been a huge celebration for Casey. Each year as we would celebrate one more year, it was a huge victory for all of us. We knew from the very beginning that we would eventually run out of earthly birthdays, and that every day (not just birthdays) was a gift. I think knowing …