This month we are joined by Allison all the way from Florida. Allison share’s her son’s story, Sam. Sam had a birth injury that resulted in HIE. He was not expected to survive a single day and he lived 15 years! Allison talks about learning new medical equipment (feeding tube, suction machine, trach, standers, wheelchairs, …
Sophia’s Story
Jennifer, Sophia’s mom, shares their story with getting a diagnosis, balancing raising a medically fragile child as well as a healthy older sibling, learning to communicate, managing a medical life in the midst of COVID and much more. In this week’s Tuesday Talk you can learn about Actin Myopathy, assistive communication devices, respiratory equipment, fining …
Hendrix’ Story
Welcome to our latest Tuesday Talks addition. Each month, on the first Tuesday, we will highlight a different families story. To kick things off we are starting with Hendix. Hendrix’s biologic grandma, Jessica, shares their story. Jessica has been Hendrix, or Henni’s, guardian for about 4 years. Around Henni’s first birthday she was involved in …
Luca’s Story
As part of our Tuesday Talks, we are talking with many different families. This story focuses on one family’s journey with mental health. While the story mainly looks at Luca, Jennifer, his mother, also talks about Luca’s brother, Lorenzo. Luca and Lorenzo were both diagnosed in their early 20’s with a mental health disorder. Lorenzo …
Surviving COVID-19
COVID-19 has impacted the entire world. The World Health Organization (WHO) put out “Do the 5” to help everyone try to reduce the spread of the virus as some great visual aids and references. The CDC has frequent updates with the numbers of people infected, prevention measures, symptoms, and more. Unfortunately the special needs community …
Casey’s Christmas – 2019
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2019 Casey’s Christmas
On Saturday – December 7, 2019 we hosted our 8th annual Special Needs Holiday Party. This year we had 3 parties all in one day. Our amazing friends from Dell Children’s Palliative Care helped us to host this event at the Dell Children’s auditorium. This is such a great place for events like these and …
Angel Ornament Dinner 2019
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2019 Special Needs Family Jamboree
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Secret Life of Pets 2 – 2019 Movie Event
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