Casey, like many kids, has a condition that is considered degenerative (it gets worse over time). This is not always obvious since her personality gets bigger, but her internal systems get weaker and more impaired each year, after reading this laweekly article we decided to start using CBD as a treatment, but the question here …
When All That’s Left Is Love
by Rabbi Allen S. Maller When I die If you need to weep Cry for someone Walking the street beside you. You can love me most by letting Hands touch hands, and Souls touch souls. You can love me most by Sharing your Simchas (goodness) and Multiplying your Mitzvot (acts of kindness). You can love …
You Meant So Much
by: Cassie Mitchell You meant so much to all of us You were special and that’s no lie You brightened up the darkest day And the cloudiest sky Your smile alone warmed hearts Your laugh was like music to hear I would give absolutely anything To have you well and standing near Not a second …
Beyond The Diagnosis
Recently I was honored to be a guest writer for a friend’s blog- Journey with the Johnsons. She asked me to honestly share some of my thoughts, fears, and experiences as a mom with a complex chronic child. I was surprised at how well the article was received and decided to share a copy of …
Nursing – Teamwork (Part 3)
Early on we were able to fill all of our hours with one nurse. However, as we added more shifts (day and night) we also had to add more nurses. Building a team and everyone working together is crucial. We encourage our nurses to not only chart what is required by the agency, but we …
5 Reasons We Avoid the Hospital
Growing up I was a pretty healthy kid, as were my siblings. When we would get sick or injured we would go the doctor or hospital, they would give us medicine, casts, stitches, etc and then in a few days we would fine. Medicine to me was very black and white. However, after having Casey …
Understanding PTSD
If you are anything like I was 10 years ago, when you hear the term Post Traumatic Stress Disorder- PTSD you picture a solider coming back from the war. You picture this soldier with night terrors and rage dealing with the traumatic images and experiences he/she may have encountered on the front line. I talk …
Nursing – Night Nursing (Part 2)
Casey slept in the middle of our bed. I had to position myself just right so that I would not pull on her feeding tube or pulseox when I moved. Some nights I had to watch for oxygen as well. I was able to sort of dislocate my hip and kick my foot out to …