We had so much fun celebrating Friendship Day! We received lots of entries for our photo contest and could not pick just one winner. We decided to add 5 runner up prizes as well. I just dropped the runner up prizes in the mail, and as soon as our shirt order is ready I will …
Friendship Day
As everyone that knows Casey knows, she was a HUGE ‘My Little Pony Friendship is Magic’ fan (MLP). She may have even been the number 1 fan. MLP has a special event happening tomorrow, July 30th. It is Friendship day! There are a few things that MLP suggest people do to help celebrate. We LOVE …
T-Shirts Are Available – LIMITED TIME ONLY!!!
Casey’s Circle T-Shirts are available for a limited time! The shop is open, and you can order your shirts anytime between now and 7/31 11:59PM CST. All order will be sent to the printer first thing on 8/1. If you are one of the many people asking where they can get one, now is your …
Finding Dory Movie Event
Today we hosted our first official Casey’s Circle event. One of Casey’s favorite things to do was to go to the movies. This was always very challenging though. The equipment we had to tote along, the noise we made and finding a theater that had accessible seating where we could actually sit with Casey. There …
Finding Dory – 2016
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What’s the Difference Between Palliative and Hospice?
When Casey was a baby, still in the first NICU, the hospital brought in a palliative doctor. They explained this as a pediatrician that worked with complex children and made us think he would come in and connect us with other families (something we had been begging for) and give us hope and be this …
Fragile or Complex?
When people refer to very medically-involved individuals there are 2 terms that seem to be used often- Medically Complex and Medically Fragile. Neither is really offensive, and there is no right or wrong term. Recently as I was explaining some of the vision behind Casey’s Circle and used the term Medically Complex frequently when referring …
What is a Circle?
Many people have heard the terms ‘circle of care’, ‘circle of trust’ or ‘circle of friends’. We purposely did not include an ‘of…’ in Casey’s Circle. When you have a medically complex child, you quickly start to build your circle. It is an all encompassing circle. You may start by adding care team members (doctors, …
Nursing – Finding the RIGHT Nurse (Part 5)
When we first started with nursing I was very unsure of how things work. I would tell the agency we used the hours I wanted filled (within the amount of hours approved by our insurance) and they skills that we needed a nurse to have, but I didn’t feel like I could say much more …
Birthday in Heaven
Birthdays have always been a huge celebration for Casey. Each year as we would celebrate one more year, it was a huge victory for all of us. We knew from the very beginning that we would eventually run out of earthly birthdays, and that every day (not just birthdays) was a gift. I think knowing …