Over the years we have acquired a LOT of medical equipment and supplies. There is not a room in our house that does not have some sort of medical items stored inside. We have the Vest in the footstool, closet systems in half the closets to house everything from tape and syringes to IV supplies …
Rants from a Woman About to Lose her S***
I have had many moments in my adult life where I have had to step away and take a moment. It just amazes me though how clueless some people really are. Let’s start 10 years ago. Tim and I were new parents and had a child with more medical issues that we had ever seen. …
First Aid & CPR Review
January 17, 2017 Emily discussed the basics of First Aid and CPR for parents. The discussion covered areas specific to children with special needs, such as getting them out of the wheelchair (or what to if that is not an option), what CPR looks like with a trach, bed boards for children that can not …
Well Said, Judd Apatow
I recently read an article on the New York Times about an interview with Judd Apatow. It was an interview discussing his response over some Trump tweets. The article itself was not about special needs at all, but something in his article really resonated with me. “There’s a danger on the internet that you think …
Our Annual Radio Interview
This was the fifth year that I join KOOP’s Reflections of Community Outreach as their Christmas guest. Each year we talk about the projects I am working on, and updates on Casey. This year Tim was able to join me and KOOP invited one of the chaplains from Dell Children’s to join us as well. …
Angel Dinner and Tree – 2016
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Holiday Party 2016
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2016 Holiday Party
On Sunday, December 11th, we hosted our 5th Annual Special Needs Holiday Party. Along with the Palliative Care Team of Dell Children’s Medical Center we celebrate with many families. Santa had books for all of the kids, and we had nearly 20 gift baskets donated by local organizations that we were able to hand out …
It’s Not Okay!
My daughter, Casey, passed away March of 2016. Some days feel like it happened yesterday and other days feel like it happened so long ago. Overall, I think my husband and I are coping and doing as well as to be expected. There are a few things that have been harder than expected, and I …
RRCA Crusader Fest – 2016
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