This was the fifth year that I join KOOP’s Reflections of Community Outreach as their Christmas guest. Each year we talk about the projects I am working on, and updates on Casey. This year Tim was able to join me and KOOP invited one of the chaplains from Dell Children’s to join us as well. …
It’s Not Okay!
My daughter, Casey, passed away March of 2016. Some days feel like it happened yesterday and other days feel like it happened so long ago. Overall, I think my husband and I are coping and doing as well as to be expected. There are a few things that have been harder than expected, and I …
The Conversation
All of my life my mind has wondered. I think most of us do this at least some (maybe I do it more than others). When I am about to meet someone knew, go to a party, present to a group, etc I imagine the event and the dialog that goes with it. I will …
Remembering Casey’s Music
Our daughter Casey had a traumatic birth that caused a severe brain injury. Her doctors didn’t think she would ever go home, but her whole life she proved them wrong. Once we got home, Marty and I had to handle not only the medical issues, but also wanted to help Casey do the things she …
Book Drive – 2016
Fall is in the air and that means one thing- our book drive is in FULL effect! We gladly collect books all year, but during the fall we really step it up a notch. We are starting to plan our annual Special Needs Holiday party. The party will take place in the main Live Strong …
Friendship Day Winners!
We had so much fun celebrating Friendship Day! We received lots of entries for our photo contest and could not pick just one winner. We decided to add 5 runner up prizes as well. I just dropped the runner up prizes in the mail, and as soon as our shirt order is ready I will …
Friendship Day
As everyone that knows Casey knows, she was a HUGE ‘My Little Pony Friendship is Magic’ fan (MLP). She may have even been the number 1 fan. MLP has a special event happening tomorrow, July 30th. It is Friendship day! There are a few things that MLP suggest people do to help celebrate. We LOVE …
T-Shirts Are Available – LIMITED TIME ONLY!!!
Casey’s Circle T-Shirts are available for a limited time! The shop is open, and you can order your shirts anytime between now and 7/31 11:59PM CST. All order will be sent to the printer first thing on 8/1. If you are one of the many people asking where they can get one, now is your …
What’s the Difference Between Palliative and Hospice?
When Casey was a baby, still in the first NICU, the hospital brought in a palliative doctor. They explained this as a pediatrician that worked with complex children and made us think he would come in and connect us with other families (something we had been begging for) and give us hope and be this …
Fragile or Complex?
When people refer to very medically-involved individuals there are 2 terms that seem to be used often- Medically Complex and Medically Fragile. Neither is really offensive, and there is no right or wrong term. Recently as I was explaining some of the vision behind Casey’s Circle and used the term Medically Complex frequently when referring …