When Casey was a baby, still in the first NICU, the hospital brought in a palliative doctor. They explained this as a pediatrician that worked […]
Fragile or Complex?
When people refer to very medically-involved individuals there are 2 terms that seem to be used often- Medically Complex and Medically Fragile. Neither is really […]
What is a Circle?
Many people have heard the terms ‘circle of care’, ‘circle of trust’ or ‘circle of friends’. We purposely did not include an ‘of…’ in Casey’s […]
Nursing – Finding the RIGHT Nurse (Part 5)
When we first started with nursing I was very unsure of how things work. I would tell the agency we used the hours I wanted […]
Nursing – Increasing Care Needs (Part 4)
Casey, like many kids, has a condition that is considered degenerative (it gets worse over time). This is not always obvious since her personality gets […]
When All That’s Left Is Love
by Rabbi Allen S. Maller When I die If you need to weep Cry for someone Walking the street beside you. You can love me […]
You Meant So Much
by: Cassie Mitchell You meant so much to all of us You were special and that’s no lie You brightened up the darkest day And […]
Beyond The Diagnosis
Recently I was honored to be a guest writer for a friend’s blog- Journey with the Johnsons. She asked me to honestly share some of […]
Nursing – Teamwork (Part 3)
Early on we were able to fill all of our hours with one nurse. However, as we added more shifts (day and night) we also […]