This month we are joined by Allison all the way from Florida. Allison share’s her son’s story, Sam. Sam had a birth injury that resulted in HIE. He was not expected to survive a single day and he lived 15 years! Allison talks about learning new medical equipment (feeding tube, suction machine, trach, standers, wheelchairs, …
Sophia’s Story
Jennifer, Sophia’s mom, shares their story with getting a diagnosis, balancing raising a medically fragile child as well as a healthy older sibling, learning to communicate, managing a medical life in the midst of COVID and much more. In this week’s Tuesday Talk you can learn about Actin Myopathy, assistive communication devices, respiratory equipment, fining …
Hendrix’ Story
Welcome to our latest Tuesday Talks addition. Each month, on the first Tuesday, we will highlight a different families story. To kick things off we are starting with Hendix. Hendrix’s biologic grandma, Jessica, shares their story. Jessica has been Hendrix, or Henni’s, guardian for about 4 years. Around Henni’s first birthday she was involved in …
Luca’s Story
As part of our Tuesday Talks, we are talking with many different families. This story focuses on one family’s journey with mental health. While the story mainly looks at Luca, Jennifer, his mother, also talks about Luca’s brother, Lorenzo. Luca and Lorenzo were both diagnosed in their early 20’s with a mental health disorder. Lorenzo …
Special Ed 101
Michell Huber with Texas Learning Advocacy presented some great tips on preparing for an ARD, as well as some methods for families to use to be the very best possible advocate they can be for their child in the special ed system. Unfortunately, we had some technical issues and our video cut out about half …
Medicaid Waivers
Elizabeth Tucker with Every Child shared LOTS of helpful information about the different Medicaid Waivers offered in Texas. She went over the differences between the waivers, how to get services started, and how to fast track you child in some special cases. Elizabeth answered many questions from families as well. If you missed this talk …
Supplemental Security Income – SSI 101
Cynda Green with Texas Parent to Parent answers lots of SSI questions. She covered everything from how to start services, who is eligible, what the funds can cover (and what they cannot), what to expect once service begin and much much more. If you missed this talk you can watch the video online below. Thanks …
Neuromuscular Diagnosis – A Closer Look at SMA
The Child Neurology Consultants of Austin recently added a new specialist to their team that has great experience with neuromuscular conditions. We were able to meet Dr. Cardon and she talked about SMA. She specializes in neuromuscular conditions, SMA being one of many. If your child has a neuromuscular condition Dr. Cardon may be a …
Comprehensive Care Clinic – CCC
The Comprehensive Care Clinic (CCC) shared lots of great information about their history, services they offer, and much more. Laura, one of the CCC social workers even talked about how to get your child started with the clinic. There are a few qualifiers to be a patient: The patient must be 17 years or younger …
Early Childhood Intervention – ECI
Easterseals shared lots of great information about ECI services. What is it, who benefits, how do you get services started, what happens when your child turns 3? From beginning Early Childhood Intervention services, to transitioning into the school system… all of your ECI questions answered! Easterseals also shared information on other programs and services they …