Growing up I was a pretty healthy kid, as were my siblings. When we would get sick or injured we would go the doctor or hospital, they would give us medicine, casts, stitches, etc and then in a few days we would fine. Medicine to me was very black and white. However, after having Casey …
Understanding PTSD
If you are anything like I was 10 years ago, when you hear the term Post Traumatic Stress Disorder- PTSD you picture a solider coming back from the war. You picture this soldier with night terrors and rage dealing with the traumatic images and experiences he/she may have encountered on the front line. I talk …
Nursing – Night Nursing (Part 2)
Casey slept in the middle of our bed. I had to position myself just right so that I would not pull on her feeding tube or pulseox when I moved. Some nights I had to watch for oxygen as well. I was able to sort of dislocate my hip and kick my foot out to …
Caseyisms
Casey was born in 2006. If she had been born even a year or two sooner, chances are she would not have survived her birth. If it had been 3-5 years sooner, chances are I would not have survived either. Medicine is constantly advancing. This has put us in an interesting position. We often refer …
Angel Dinner and Tree – 2015
[Best_Wordpress_Gallery id=”59″ gal_title=”Angel Dinner 2015″]
2015 Special Needs Holiday Party Wrapup
On Saturday, December 12th, we co-hosted our 4th Special Needs Holiday Party. We co-hosted with CPATH Texas for the second time and with the Palliative Care Team of Dell Children’s Medical Center. This was our first year hosting the event at Dell Children’s Medical Center. We took last year off, and came back bigger and …
Nursing – Getting Started (Part 1)
I remember it like it was yesterday. I had all of the traffic lights on the back roads timed perfectly. I knew exactly how long I had at each red light to jump over the console, suction Casey, and get back behind the wheel before it turned green. I knew all the places I could …
Holiday Party – 2015
[Best_Wordpress_Gallery id=”57″ gal_title=”Caseys Christmas 2015″]
Decorating the Tree
It was a beautiful day today! We really could not have picked a better day to decorate the angel ornament tree. We had some great helpers volunteer their afternoons to help us get everything done. The area around the hospital is called Mueller. Mueller graciously allowed us to decorate a tree in the park directly …
8 Gifting Tips for Complex Kids
Buying gifts for kids with complex needs can be tricky. Hopefully these tips can help you find the perfect gift for the special little ones in your life. An easy go-to gift that people love to get are Gift Baskets for Women. They are cute, soft and cuddly and you can pick one up just …